Angelman Ireland
Angelman Ireland

Welcome to our website for Angelman Syndrome in Ireland - our story.

Angelman Syndrome as a rare disorder falls into all our lives out of the blue. This is our journey, our mistakes, challenges and high points. It might be of some help and use.

Today - June 2018


I've written a blog about our experiences in raising a child with Angelman Syndrome. Hopefully you can learn something from it.









Welcome to our journey

The story of living with a child with Angelman UPD.

Meet Boo

Go Go Go!


Find out what Boo likes and wants to try!




Communication is so much more than just speech.

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© Sara Hetherington