The start 2008

Welcome to our journey

Angelman UPD




<< December2017 >>


Life today 2017

Daily things I wish I had known sooner.



Go go go

Meet Boo

What she likes and wants to try




Communication is so much more than speech.



Welcome to our website for angelman  syndrome in Ireland - one story.

Angelman Syndrome as a rare disorder falls into all our lives out of the blue. This is our journey, our mistakes, challenges and high points. It might be of some help and use.


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© Sara Hetherington